Wednesday, June 22, 2011
It is so hard to believe that 2 years have passed since our darling daughter was born! What a ride her little life has been! From the moment she came into our lives, she has kept us on our knees in prayer and scratching our heads in confusion.
Even though she was our second baby girl (you know, after you have one, you're experts, right?), we had no idea what we were doing. Our first daughter was a big baby (8 lbs 13 oz) and never lost an ounce. She left the hospital and gained an ounce and by the next week, she was 9 lbs 2 oz. and she didn't stop there. :)
Evelyn - well, she wanted to make her own way. She started off by losing weight (born at 7 lbs 9 oz), even more than a normal baby would. For the sake of yucky, stinky details, let's just say that the milk was going through her too quickly. :)
Once she did start to gain weight, we noticed that she seemed to have other trouble. We already had determined that we would have to bottle feed her (not our original plan) because she was tongue tied, but now she seemed to be falling asleep while she was eating - and then waking up very startled. This was weird. It started happening more and more. So, we took her in for a swallow study (the first of many it turns out). To make a very long, painful story shorter, she aspirates when she drinks. That means that some of it goes into her lungs. When she was little, her body would "shut down" to protect her lungs. As she got older, she coughed and choked more -- until it was so painful for her to drink from the bottle that she had to have an ng tube.
Oh this was heartbreaking! We spent her 3 month birthday at Riley learning how to put the tube down her nose into her stomach so that she could eat without damaging her lungs (it had to be changed so I had to learn how to do this). I felt so helpless. I am thankful that I have the loving arms of my heavenly Father to lean on because I felt very alone and desperate as we spent the night in the hospital. Here was my precious baby who was so sick and I could do nothing to fix it for her.